Part of the mission of Aaron’s Tracheostomy page has always been parent-to-parent networking and support. Information is necessary for parents of medically challenged children, however what often helps parents most is knowing that they are not alone.
Joining a local support group for face-to-face networking is great, but local support groups are hard to find. Plus, caring for a medically fragile child makes getting out to a support group difficult.
Over the years, the way we communicate online continues to change and evolve. Online support systems such as usenets, listserves, email groups, bulletin boards, message boards, forums and even blogs have now become pretty much obsolete with the latest trend: social media sites. Facebook is currently the most popular way people connect for online support.
Sadly for some, Aaron’s Tracheostomy Page listserv and message boards were finally closed down due to lack of use. Our Facebook page is currently very busy with over 5,000 members. This is a “closed” group, meaning members have to request to join and are manually approved by an administrator. Posts and comments can not be seen by the general public.
Facebook has advantages and disadvantages over other platforms. But it is where people are online, at least until the next big thing comes along.
Also see tracheostomy.com Facebook terms of service.
Aaron's Tracheostomy Page 