Kevin Burke
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Hi My name is Lori Burke. I am writing about my son, Kevin. he is 12 yrs old. He has had his trach since 12/99. He has a very rare syndrome that affects his brain, eyes and muscles. In December, he was diagnosed with Central and obstructive apnea. The trach corrected the obstruction, but Kevin still had some apneic episodes after the trach. His CO2 levels were also abnormally high, so Kevin was put on a vent 24 hrs. a day. After about a month, Kevin used the vent only at night. He does very well- We have a CO2 monitor at home and his levels have normalized. He does not need oxygen unless he is sick. He is a very happy boy and we enjoy him so much!
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