Jack Davis Rogers
 |
Jack and Dylan were born in Brisbane on the 14th of September 1993.
Dylan's membrane had ruptured at 17 weeks gestation and the doctors
told me I would loose both babies however I held on for 8 weeks and
they were born at 25weeks. Jack weighed 830 grams and Dylan weighed
760 grams. Jack had a brain hemorrhage on Day 1 which has resulted
in mild quadriplegic cerebral palsy. On day 7 he had patent duct
operation on his heart and remained in ICU for 10 weeks. Dylan
unfortunately died on day 20 from multiple pneumothoraxes (holes in his
lungs). Jack came home 4 1/2 months later on home oxygen which he
remained on for about 18 months. He developed a stridor at about 4
months corrected and had his 1st microlarynoscopy at approx. 1 yr old.
The diagnosis is subglottic stenosis and tracheal malacia due to being
intubated for 8 weeks. Just before his 4th birthday he had CO2 laser
surgery but it didn't work and 3 weeks later he had a tracheostomy
which he still has. Very soon he will have his 1st LTP and if all
goes well we will begin the decannulation process. Jack is also
severe to profoundly deaf and attends a Hearing Impaired Unit within a
regular school. At first I was scared to leave him by himself in case
the trachy comes out but I've trained the teachers how to suction him
and what to do if it does come out. We are fortunate that he does not
have a complete blockage and has a few hours to get to a hospital
before he starts to have any real trouble. We will keep you updated
on his surgery.
- Sandy in Brisbane. If anyone (Particularly anyone in Brisbane) would like to ask or talk to me I am more than willing.
E-mail: sandyjoy@start.com.au
