Korbyn Lehr Brown
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4 months
On February 17, 1999 Mommy's Dr. decided to take me by C-Section 2 1/2 weeks early because I wasn't getting proper blood flow anymore. I weighed 4lbs 12oz and 21 inches long. My mommy & daddy were very scared when I was born because something wasn't right the nurses were unable to clear out my airway because of an obstruction. The Teddy Bear Transport Team took me to Cook Children's Hospital of Ft. Worth to see what was wrong. It was really hard on mommy and daddy both, mommy was sad because she couldn't be with me &daddy was sad because he had to leave mommy. But she said it's Ok daddy you go watch over our angel. Dr. Tim Black met us upon arrival and took me right into surgery to repair my TE Fistula. My esophagus hadn't formed all the way to my stomach, it was still connected in a mass at the top of my trachea. I was in surgery for 7 hours and then went to NICU was put on a vent. During the next 3 weeks, they tried 3 times to get me off the vent & finally I had to have a bronch done. They found I had Trachea Malacia, my windpipe was so floppy it would collapse shut and not allow any airflow through that's when I got my Trach. During that time I also had Jaundice so you know what that calls for, Yep UV Lights & Cool Sunglasses. I just had to stay another couple of weeks upstairs in the Transitional Care Unit while mommy & daddy learned how to take real good care of me. Finally the day came to go home, mommy & daddy were happy & sad, and the thought of taking me home alone without any nurses to rely on was quite frightening. I came home with what seemed to be thousands of things to take care of me with and mommy became very organized really fast.
Mommy quit work to stay home with me and I also having nursing 40 hours a week. I've had my ups & downs. The Drs have found that part of my brain didn't develop & I have Cerebral Palsy. I'm getting ST, OT, & PT weekly and of course mommy & the nurses work with me daily. As of June I am able to hold my head up by myself for about 30-45 seconds, everyone just praises me!! I can only see shadows and see best with my peripheral vision. I do have a good sense of hearing. I just got my Big Boy Trach 3.5 PED and am much happier. I sleep through the night although mommy has to get up about every 5-7 minutes to suction me between 2am - 5am, yes I sleep right through it. I guess I take after my daddy.
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12 months
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More Pictures of Korbyn, Updated 4/25/01
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Mark & Doshia *Daddy & Mommy to Korbyn 4 months. Tracheoesophageal Fistula (repaired), Trached-Trachea Malacia, Reflux w/g-button & Nissen Fundoplication, Agenesis of Corpus Callosum, Cerebral Palsy. Catrina 24yrs. & Stinson 18yrs.*
