Aleyda Pallares Espinoza
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Aleyda Pallares Espinoza born December 22, 2004. She weighed 6 pounds 9 ounces.
She was 17.5 inches long. She was born in Hobbs, New Mexico to Luis and Laura
Espinoza. Third child and first girl in the family. During the pregnancy I
always got told every thing was ok and every thing looked good. Have had my 2
boys one at 28 weeks and the second one at 36 weeks, I was put at high risk. My
first pregnancy had been a little girl and I lost her at 20 weeks. My second one
was my first son and I went into labor at 28 weeks he weighed 2lbs 2oz. He is
now seven years old and as normal as can be. Thank God. My second child was born
at 36 weeks and thank the Lord everything was fine with him he is now 2 years
old. With Aleyda we made it to 38 weeks we couldn't be happier. Every thing went
well the day I was taken in for a C-section. When the baby was delivered I
didn't hear her cry. Having had complications with my other two pregnancies, I
was worried. Then what happened next was like a night mare. The pedi doctor told
my husband and me that our baby was born with deformities. I didn't even know
what to expect. Everything from then on was like a daze, I knew I was there but
it all felt like a bad dream. The doctor told us he didn't know what was wrong
with her but all her joints were affected in some way. Then she wasn't breathing
well so she was put under the oxygen hood for a while but she kept getting
worse.
She was taken by ambulance to Lubbock, TX to Covenant Children's Hospital. I was
two hours away from my daughter and in the hospital. On Christmas day I drove to
Lubbock to get some bad news. The doctors in the NICU told me Aleyda had a
syndrome that is very rare it is called Arthrogryposis. This is a disorder in the
joints. We then were told that Aleyda did not control her secretions well so she
had to be suctioned. She got her G-tube when she was 3 weeks old and on January
29 we went home from NICU. Then on February 21 she was air lifted to Lubbock
with RSV. She was in the hospital in PICU for 10 days and then we went home. On
March 30 she was back in the hospital to have a fundo done because her reflux
was real bad and it was making her aspirate. She went home on April 3 then she
was put back in the hospital on April 5th. Then she went home the next day. She
was home for 6 weeks and we were so happy because she was doing so well. Then on
June 8 she coded. She was air lifted to Lubbock again and put in the PICU. The
next morning she went into cardiac arrest. The PICU doctors told me I really had
to consider doing a trach. I just refused and we went home again on June 15.
On June 27 she was taken by ground to Lubbock for breathing distress. This time
the ICU staff told us that she could use the Bi pap machine to help her while
she slept. We tried it for a week and on July 5 we were ready to go home but the
home health place would not hear of letting a baby go home on a bi-pap machine.
Bi-paps are not approved by the FDA for babies. So once again the doctors told
me my only option was a trach. I wanted a second opinion so we were air lifted
to Albuquerque, NM to UNM. I was told the same thing there so I had to make a
few phone calls to my insurance so that they would let me come back to the
Lubbock, TX hospital because it was only 2 hours away from home. UNM is almost 6
hours away from home.
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Finally on July 13 , 2005, we were back in Lubbock. Her tracheostomy was scheduled for July 14, 2005. She was almost 7 months old when she got her trach. She is now 9 months old and doing well. We are doing well also. It took some getting used to but the good Lord has never left our side. We are so blessed to have Aleyda because she has taught us so much. She has taught us how to never give up. The Lord always knows what he is doing and he is never wrong. I'm so glad I found this page because it is a big blessing. I know Aleyda's upper air way obstruction will some day soon be better and I have faith that the Lord is going to take that trach out soon. While we get it taken out I know the Lord will never leave our side. We all have to understand that we are special parents because we are doing the will of God. I know sometimes it is hard but just pray and it always gets better. I would love to hear from someone who has a similar case to ours. Thank you and God Bless all of you.
