Riley Kirk
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Riley Kirk was born on June 7, 1996. About eight weeks later she started having problems breathing. At first she was diagnosed with the Croup and we were told the breathing problems would subside within about 10 days. They didn't. A local ENT referred us to a specialist at the University hospital in Iowa City who diagnosed a subglottic hemangioma. Riley received her trach in August of 1996 and started Interferon therapy and laser surgeries. By December she still had not gained back much weight and the surgeon reported concerns in some quarters that Interferon may cause neurological damage in infants. We saw a neurologist who was not at all pleased with her development. Consulting with that doctor and our original specialist, we decided to stop the interferon. Riley started gained an appetite and weight almost overnight. She continues laser surgeries every eight weeks or so and we are hopeful the trach will be removed in late 1997 or early 1998.
- Update: Riley Kirk has been successfully decannulated.
- Jeff and Amy - E-mail: jknoble031@aol.com
