Adrian Alberto Paramo
Adrian Alberto Paramo 2/27/02
Mercy Hospital, Des Moines IA.
Adrian was born February 27, 2002 at 34 weeks, 8 weeks after my water had broken. I had really high hopes at that point that things were going to be okay. I had spent the past 8 weeks on bed rest in the hospital only able to go to the bathroom and sit on the sofa. Everyone was telling me the longer we can keep him in your womb the better the out come.
Well, things didn't turn out the way we had hoped. Once he was born I heard him cry for just a moment then they
whisked him off to the NICU. I was not fully prepared for what was to come, my OBGYN was
sure he would be able to come in a few weeks.
That was the beginning of a 7 month hospital stay. Adrian was intabated right away in the beginning things looked good. Adrian then got sick after a few weeks that was just the beginning of all the IV's and antibiotics. At one point he was put on the High Frequency Vent. He was then paralyzed with some medication, to stop him from working so hard to breath and let the vent do its job, at that time he was needing 100%
O2. That was when the doctor gave us the talk we all dreaded, (taking off the
vent and letting him go). My husband and I were devastated.
Weaning him off the vent didn't come easy he failed the first attempt right away. That is when they brought an ENT doctor in. He then suggested putting a transpyloric tube in. That is a feeding tube that is fed in through the nose and passes the stomach into the intestines. The thoughts were he may be aspirating so they took that problem out of the equation and planned on another attempt in a few weeks. It was successful Adrian was on CPAP for 1 week. He hated the tube in his nose, pulled it out every chance he had. He was then put on nasal cannula.
Things looked good for a little while. The transpyloric tube was removed and he was able to begin nippling from a bottle. One thing led to another and it looked as if they were going to have to re-intabate him. So they stopped the feedings ordered a swallow study and that was when we found out he was aspirating with every swallow. Some more tests were done and they found that he had really bad reflux. Adrian was going to need a nissan and G-tube.
We were off to Iowa City where he was to have surgery and a bronch done for the first time. The doctors had spoken to my husband and I before about possibly putting a trach in. They wanted to take care of the stomach issues that seemed to be causing some of Adrian's breathing problems. We would see if that made any improvement or not. The doctors in Iowa City checked Adrian over. The cardiologist had an echo and EKG done, the results were not good. Adrian's little heart was working too hard. His right upper ventricle was thickening. That is when they decided putting a trach in would be the best thing for him.
The surgery went well he recovered quickly. Within a week we were back at Mercy Hospital in Des Moines. Once again we encountered some more problems. Another Bronch was done while he was awake. That is when they found he had tracheal and bronchial mylasia. A longer trach was ordered and things just took off! We were able to bring Adrian home in late September. He was then 7 months old.
Adrian is now 16 months. He is growing like a weed. Very happy and energetic. Just a month ago we began our adventure with the Trach Ring. He is now on the
trach ring (oxygen) during the day and the vent at night. His bronchial mylasia is gone and his tracheal mylasia has improved enough that he is now able to use a 4.0 trach.
Whoo, hoo!!!
Annette Paramo
