Noah Joesph Deroeven
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Our son NoahJoesph Deroeven was born July 98. He was diagnosed with Charge
Syndrome. He has had a trach since about 6 weeks, He has bi-lateral parallysis of the vocal
cords, reflux which is why he has had a fundo done and a mickey in place.
So far doctors have given us no reason to hope for decannulation, but maybe some
day. He goes in to HSC in Toronto next week for about his 6th or 7th bronch, cross your fingers...
Cheers!!
David
