Welcome to Aaron's Tracheostomy Page
This site is dedicated to my son Aaron who had a tracheostomy for the first 4 years of his life. I hope that Aaron's Page will be helpful to others caring for a child with a tracheostomy, or to anyone seeking to learn more about tracheostomies.
Featured
Child
Abigail MacMillan was born on February 3, 2001. She had a
forceps and vacuum delivery, and the cord was around her neck.
Not a very nice way to enter the world. At 5 weeks of age she
was diagnosed with Central Congenital Hypoventilation Syndrome.
She needs a ventilator to breathe for her when she sleeps. Other
than that, she is extremely healthy and developmentally on
track.
Mission
To help assure the highest quality home care for children with tracheostomies.
To provide needed tracheostomy information in order to ease some of the anxiety related to caring for a child with a trach. A well-informed family will usually experience less anxiety.
To facilitate parent-to-parent networking and support. Information is necessary for parents of medically challenged children, however what often helps parents most is knowing that they are not alone.
To help assure the highest quality home care for children with tracheostomies.
To provide needed tracheostomy information in order to ease some of the anxiety related to caring for a child with a trach. A well-informed family will usually experience less anxiety.
To facilitate parent-to-parent networking and support. Information is necessary for parents of medically challenged children, however what often helps parents most is knowing that they are not alone.
Save the Dates
The Multidisiplinary Care of the
Child with a Tracheotomy, October 18, 2008. Children's Hospital of Philadelphia, Download Brochure (PDF format).
What's New?
All new TrachKids.org!
Pass It On: New forum to facilitate equipment donations between members.
The Multidisiplinary Care of the
Child with a Tracheotomy, October 18, 2008. Children's Hospital of Philadelphia, Download Brochure (PDF format).
What's New?
All new TrachKids.org!
Pass It On: New forum to facilitate equipment donations between members.
